About this Course
1,112

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지금 바로 시작해 나만의 일정에 따라 학습을 진행하세요.

탄력적인 마감일

일정에 따라 마감일을 재설정합니다.

초급 단계

완료하는 데 약 11시간 필요

권장: 5 weeks of study, 2-3 hours/ week...

영어

자막: 영어

100% 온라인

지금 바로 시작해 나만의 일정에 따라 학습을 진행하세요.

탄력적인 마감일

일정에 따라 마감일을 재설정합니다.

초급 단계

완료하는 데 약 11시간 필요

권장: 5 weeks of study, 2-3 hours/ week...

영어

자막: 영어

강의 계획 - 이 강좌에서 배울 내용

1
완료하는 데 3시간 필요

What is on Your Mind?

In this module, we will introduce the subject of genetic privacy. In a time in which more and more genetic material and information is being stored in biobanks, research labs and private companies, the urgency to consider the concept of ‘genetic privacy’ becomes all the more pronounced. We will discuss different practices dedicated to the disclosure and application of genetic data, and we ask you to reflect on your initial stance towards these practices. ...
3 videos (Total 12 min), 9 readings, 1 quiz
3개의 동영상
Course Introduction3m
Genetic data: Practices of disclosure7m
9개의 읽기 자료
Course Overview10m
Meet the instructors & the team5m
Welcome to Leiden University5m
Community Guidelines & Academic Toolkit10m
Complete our short survey10m
Sources and video material30m
How do you extract DNA?5m
Download your Learning journal3m
Learning journal - Step 120m
1개 연습문제
What do you think about genetic privacy?30m
2
완료하는 데 2시간 필요

Open up Your Mind

This part of the course will stimulate you to reflect critically on the different types of practices that work with genetic data, among which the Personal Genome Project initiated by George Church. You will get familiar with the ethical questions that these practices could raise. Furthermore, you will be encouraged to think about what the concept of genetic privacy means to you personally. What actually is genetic privacy? And what are the borders of its definition? How can we define the border between individual autonomy and public interest? Where do you place this border yourself? ...
2 videos (Total 7 min), 3 readings
2개의 동영상
What is genetic privacy?5m
3개의 읽기 자료
Interview with George Church10m
Sources and video material30m
Learning journal - Step 230m
3
완료하는 데 3시간 필요

Connect your mind

This week we will enrich the ethical debate around genetic privacy by viewing the subject from the perspective of art and culture. We will see how artworks and cultural objects can foreground the ambiguities, emotions and (cultural) assumptions often neglected in mainstream debates around biotechnological developments. Moreover, we will explore the potential of art to allow new publics to arise in the discourse around genetic research. In this module, we would like to make you aware of how your own emotions and expectations might influence your stance on the subject. From there on, you can get to a more nuanced point of view towards the issue of genetic privacy....
4 videos (Total 12 min), 4 readings
4개의 동영상
How can art enrich the debate around genetic privacy?5m
Art as a space for disruption - Intro36
Art as a space for disruption5m
4개의 읽기 자료
Sources and video material30m
Interview with bioartist Adam Zaretsky4m
Sources and video material30m
Learning journal - Step 330m
4
완료하는 데 4시간 필요

Make up your mind

Different groups of people with sometimes opposing interests take part in the public debate around the disclosure and application of genetic data. For example, patients, consumers, researchers, corporations, or politicians. These groups, or stakeholders, bring forward diverse arguments to advocate their position. Their arguments are often formed by emotions, gut feelings and cultural values. In order to regulate the disclosure of genetic data, while taking into consideration the notion of genetic privacy, we have to identify the different stakeholders and their values present in this debate. ...
5 videos (Total 16 min), 2 readings, 2 quizzes
5개의 동영상
Podcast CEO of Hartwig Medical Foundation4m
Podcast Patient3m
Podcast Mother of three3m
Podcast Professor of digital cultures4m
2개의 읽기 자료
Source and video material30m
Learning journal - Step 4
1개 연습문제
Let's recap!30m
3.8
3개의 리뷰Chevron Right

최상위 리뷰

대학: RHMay 22nd 2018

Great information on a topic that I have never really given much attention to. Great instructor and the course is well laid out. Strongly recommended.

강사

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Lotte Pet

Art historian and artist
Faculty of Humanities, Leiden University
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Robert Zwijnenberg

Professor of Art and Science Interactions
Faculty of Humanities, Leiden University

레이던 대학 정보

Leiden University is one of Europe's foremost research universities. This prominent position gives our graduates a leading edge in applying for academic posts and for functions outside academia. Leiden University is the oldest university in the Netherlands. It was founded in February 1575, as a gift from William of Orange to the citizens of Leiden after they had withstood a long siege by the Spanish. Our motto is: Praesidium Libertatis — Bastion of Liberty....

자주 묻는 질문

  • 강좌에 등록하면 바로 모든 비디오, 테스트 및 프로그래밍 과제(해당하는 경우)에 접근할 수 있습니다. 상호 첨삭 과제는 이 세션이 시작된 경우에만 제출하고 검토할 수 있습니다. 강좌를 구매하지 않고 살펴보기만 하면 특정 과제에 접근하지 못할 수 있습니다.

  • 수료증을 구매하면 성적 평가 과제를 포함한 모든 강좌 자료에 접근할 수 있습니다. 강좌를 완료하면 전자 수료증이 성취도 페이지에 추가되며, 해당 페이지에서 수료증을 인쇄하거나 LinkedIn 프로필에 수료증을 추가할 수 있습니다. 강좌 콘텐츠만 읽고 살펴보려면 해당 강좌를 무료로 청강할 수 있습니다.

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